The Vital Role of Patient Advocacy Groups in Prostate Cancer Care

Category: PSE

Read Time: 1 Minute

Last updated: 14 June 2024

At Oxford BioDynamics (OBD), we are dedicated to pioneering innovations in precision medicine to advance personalized healthcare for life-changing diseases. Our 94% accurate prostate cancer detection blood test ( is a testament to our commitment. However, we recognize that medical breakthroughs alone are not enough to combat this disease. Patient Advocacy Groups (PAGs) play a crucial role in the holistic care and support of prostate cancer patients.

PAGs provide invaluable support and resources to those affected by prostate cancer. They offer education, emotional support, and practical assistance that are essential for navigating the complexities of a cancer diagnosis and treatment. These groups work tirelessly to ensure patients and their families do not face this journey alone. At OBD, we are proud to raise awareness about and support these incredible organizations. Together, we can make a significant impact on the lives of those affected by prostate cancer.

Explore US PAGs

Zero Prostate Cancer

ZERO Prostate Cancer is dedicated to ending prostate cancer and providing support to those affected. Through research advancements, support services, and health equity initiatives, they strive to meet the critical needs of our community.

Prostate Cancer Foundation

The Prostate Cancer Foundation is committed to funding groundbreaking research and translating discoveries into life-saving treatments. By accelerating progress in prostate cancer research, they aim to end death and suffering from this disease.

Prostate Cancer Support

Prostate Cancer Support is a charity run by dedicated volunteers. Their patient-led organization provides vital support and resources to prostate cancer patients and their families, prioritizing direct assistance and minimizing administrative costs.

The Prostate Net

The Prostate Net is a patient education and advocacy organization. Founded with a vision to provide accessible information for prostate cancer patients and families, they offer a range of educational resources and community interventions to empower informed decision-making.

Prostate Cancer Research Institute (PCRI)

As a 501(c)(3) nonprofit organization, the Prostate Cancer Research Institute is committed to providing patients with comprehensive research-based resources. Their expert team ensures that individuals have access to personalized information to navigate their treatment options effectively.

Prostate Health Education Network (PHEN)

PHEN was founded by Thomas A. Farrington, a prostate cancer survivor. Their mission is to eliminate African American prostate cancer disparities and increase resources for all men affected by the disease. Through educational campaigns, screenings, and support services, they work towards achieving health equity in prostate cancer care.


Malecare is one of America's leading men's cancer survivor support and advocacy nonprofit organizations. With a multidisciplinary team of professionals, they provide peer-to-peer support, innovative technology solutions, and community programs to enhance the quality of life for survivors and their loved ones.

Men's Health Network (MHN):

Men's Health Network is a national nonprofit organization focused on promoting men's health awareness and disease prevention. Through educational programs, screening initiatives, and advocacy efforts, they aim to reach men and their families across the nation with vital health information and support.

Prostate Cancer Impact Alliance

The Prostate Cancer Impact Alliance is committed to addressing gaps in prostate cancer advocacy, policy, and research. Through collaborative efforts, they strive to accelerate progress in prostate cancer awareness, education, and patient care nationwide.

National Alliance of State Prostate Cancer Coalitions (NASPCC)

NASPCC is a network of state coalitions and individuals committed to supporting men and families affected by prostate cancer. Through advocacy, education, and collaboration, they strive to improve awareness, access to care, and health outcomes nationwide.

Urology Care Foundation

The Urology Care Foundation is dedicated to improving urological care through research funding, patient education, and humanitarian initiatives. Their mission is to support advancements in urology and enhance the quality of life for patients nationwide.

Arkansas Prostate Cancer Foundation

The Arkansas Prostate Cancer Foundation's mission is to educate, encourage timely detection, and engage men and families affected by prostate cancer. Through public education events and personalized guidance, they provide support from diagnosis through survivorship.

Prostate Forum of Orange County

The Prostate Forum of Orange County is a nonprofit organization providing prostate cancer information and support in Orange County, CA. Founded in 1992, they offer a safe space for men to discuss all aspects of the disease and access valuable resources.

California Prostate Cancer Coalition

The California Prostate Cancer Coalition (CPCC) is a nonprofit coalition dedicated to prostate cancer awareness, education, and support in California. Through public education events and a Prostate Health Resource Center, they aim to empower individuals and communities with valuable information and resources.

Prostate Conditions Education Council (PCEC)

PCEC is a national nonprofit organization dedicated to prostate health awareness, education, screenings, and support services. Their mission is to save lives through comprehensive prostate disease education.

Veterans Prostate Cancer Awareness (VPCa)

VPCa is a registered nonprofit organization dedicated to saving lives through awareness, early detection, and support among veterans and active-duty military personnel. They provide educational resources and comprehensive support throughout the prostate cancer journey.

Explore UK PAGs

Prostate Cancer UK

Prostate Cancer UK’s mission is to stop prostate cancer from killing men. By funding research to develop better treatments and early detection tests, they aim to save thousands of lives and potentially establish a national screening program.

Prostate Cancer Research

Founded by Professor John Masters, Prostate Cancer Research aims to eliminate the impact of prostate cancer through innovative research, addressing unmet needs such as racial inequalities and bone metastasis. They focus on empowering patients with better choices and support.

Tackle Prostate Cancer

As the only patient-led, UK-wide charity, Tackle Prostate Cancer represents people with prostate cancer and their caregivers. With roots dating back to the mid-1990s, they rely on volunteers to support their network of groups across the UK.

Out with Prostate Cancer

Out with Prostate Cancer provides support, shared experiences, and practical information primarily to gay and bisexual men, trans-women, and non-binary people. They offer an open forum to reduce isolation and gain perspective through shared experiences.

Graham Fulford Charitable Trust (GFCT)

Founded by Graham Fulford, GFCT promotes awareness of prostate cancer and offers a range of blood tests for health screening. They organize PSA testing events and broader health tests to catch various conditions early.

Prostate Cancer Support

For over 20 years, Prostate Cancer Support has been a patient-led charity run by volunteers, focusing on benefiting prostate cancer patients and their families with minimal administrative costs.

Orchid Fighting Male Cancer

Orchid, one of the UK's leading male cancer charities, has been saving lives from testicular, penile, and prostate cancers through support services, awareness campaigns, and research since 1996.

Prostate Cancer Support Organization (PCaSO)

PCaSO is a volunteer-run charity for men diagnosed with prostate cancer. They provide understanding and support from those who have experienced the disease, operating without paid staff or offices.


Formed in 2019, Prost8 UK advocates for the availability of minimally invasive treatments for medium-grade prostate cancer within the NHS. They aim to improve early screening and treatment options for better patient outcomes.

Reading Prostate Cancer Support Group

Established in 2007 by the Royal Berkshire Hospital, this support group is backed by the Urology Unit and staff, providing support and resources to those affected by prostate cancer.

Prostate Cymru

A mainly voluntary group, Prostate Cymru fights prostate cancer in Wales by raising awareness and procuring equipment. They aim to make a significant difference in combatting this deadly disease.

The Prostate Project

Founded in 1998, The Prostate Project supports prostate cancer treatment and diagnosis in Guildford. They focus on early diagnosis and operate with minimal administration costs, largely relying on volunteers.

Norfolk & Waveney Prostate Cancer Support Group

Established in 2004, this group offers bi-monthly meetings and support for men and their families coping with prostate cancer, working closely with the Urology Department at local hospitals.

Prospect Bristol and District Prostate Cancer Support Group

Run by prostate cancer survivors, Prospect provides support to patients, their families, and carers in Bristol and surrounding districts.

CHAPS The Men's Health Charity

Founded in 2000, CHAPS raises awareness of men’s health issues, especially prostate cancer, through screening events and campaigns, advocating for a national screening service.

Fighting Prostate Cancer

This campaign, launched in partnership with Queen’s Hospital and Burton Albion Football Club, brings prostate cancer awareness and screenings to familiar settings like football stadiums, making health checks more accessible.

CPCSG (Chilterns Prostate Cancer Support Group)

Established in 2005, CPCSG provides support and information to men with prostate cancer and their families in Berkshire, Buckinghamshire, and Oxfordshire, focusing on awareness and peer support.

Oxfordshire Prostate Cancer Support Group (OxMen)

Since 2011, this group has provided friendship and support to prostate cancer patients and their families. They offer group meetings and one-on-one support to share experiences and provide information.

Isle of Wight Prostate Cancer Support Group

Formed in 2011, this group organizes regular PSA tests, monthly support meetings, and provides resources and support for men diagnosed with prostate cancer and their families on the Isle of Wight.

Prostate Scotland

Prostate Scotland is a Scottish charity providing information, advice, and support on prostate health and disease. They aim to inform, educate, support, campaign, and advance prostate disease awareness and treatment in Scotland.

Explore International PAGs

Global Prostate Cancer Alliance

The Global Prostate Cancer Alliance aims to diminish the global burden of prostate cancer by enhancing local, national, and international advocacy and awareness. Their mission is to ensure no man on our planet is denied access to prostate cancer information, diagnosis, or treatment. They facilitate dialogue, media connections, and strategic planning among stakeholders worldwide.


Movember is dedicated to changing the face of men's health by raising awareness and funds for prostate cancer, testicular cancer, mental health, and suicide prevention. Through their annual Movember campaign, they engage millions to grow moustaches in November to spark conversations and raise funds for critical health issues affecting men.

Prostate Cancer International

Prostate Cancer International provides a global platform for the dissemination of comprehensive, reliable, and accessible information about prostate cancer. They focus on patient education, support, and advocacy, aiming to empower men and their families to make informed decisions about prostate cancer screening, diagnosis, and treatment.

International Prostate Cancer Foundation

The International Prostate Cancer Foundation is committed to saving lives and advancing knowledge about prostate cancer. They provide support, education, and resources to patients, survivors, and caregivers. Their mission includes funding research, raising awareness, and promoting early detection to improve outcomes for men worldwide.

Active Surveillance Patients International

Active Surveillance Patients International advocates for men with prostate cancer considering or undergoing active surveillance. They provide education, resources, and support to help patients make informed decisions about their treatment options. Their goal is to promote the safe and effective use of active surveillance as a management strategy for low-risk prostate cancer.

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Detect the presence or absence of prostate cancer from blood with 94% accuracy. The PSE is a powerful screening test that identifies an individual’s current likelihood of having prostate cancer with just a routine blood test. The PSE is administered alongside or following a standard PSA test to significantly boost screening performance and reduce the number of men referred for unnecessary MRIs, biopsies, and treatments.

This powerful test is valuable for identifying individuals requiring biopsy and those suitable for active surveillance without further testing.

Learn About PSE
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